SOCIETY
14.11.23 15:40
Georgia imported Vosoritide medicine for medication of rare achondroplasia disease, the Health Ministry confirmed.
Four children diagnosed with achondroplasia will start medication at the initial stage, with others gradually joining the process in 2024.
The medicine will be used at the multi-profile Iashvili Children’s Clinic under tight pediatrician monitoring since the drug may have side effects. The parents will use Vosoritide at home after one month.
Parents of children diagnosed with achondroplasia demanded the import of Vosoritide medicine for many months, holding regular protests.
The Coordination Council for Rare Diseases approved a national management protocol for achondroplasia in July and authorized Vosoritide.
The annual budget for the management of achondroplasia is GEL 34 million.
1tv.ge
Read: 253
Write comment
(In their comments, readers should avoid expressing religious, racial and national discrimination, not use offensive and derogatory expressions, as well as appeals that are contrary to the law)
News feed
-
Separatist South Ossetia may be abolished due to total absence of people
14:5315.05.24
-
14:0015.05.24
-
NATO Spokesperson: We urge Georgia to change course and to respect the right to peaceful protest
13:1515.05.24
-
Estonian Foreign Minister: This law is a symbol of the choice between Russia and the European Union
12:3015.05.24
-
11:3915.05.24
-
11:0815.05.24
-
10:3515.05.24
-
Will France recognise Georgia's territorial integrity?
19:2414.05.24
-
In January-April, Georgia bought 1.1 billion cubic meters of gas from Azerbaijan
18:0014.05.24
-
17:3014.05.24
-
17:0014.05.24
-
Charles Michel: I am disappointed with what is happening in Georgia
16:3714.05.24
-
16:0014.05.24
-
15:1114.05.24
-
Levan Khabeishvili: The reputation of this government will never be restored
14:2914.05.24
-
13:4714.05.24
-
PM expects James O’Brien's visit to cover visa liberalization, free trade agreement, direct flights
13:0614.05.24
-
European Integration Committee participates in parliamentary conference of EU candidate countries
12:2614.05.24
-
11:5314.05.24
-
Foreign Ministers of Latvia, Estonia, Iceland and Lithuania will visit Georgia on May 15
11:0214.05.24
-
10:0014.05.24
-
18:0013.05.24
-
Tbilisi Mayor: It's evident President follows instructions
17:1513.05.24
-
16:3013.05.24
-
15:5613.05.24
-
15:0013.05.24
-
14:1513.05.24
-
Patriarchate: The appeal of the Patriarch was a call to prayer, peace and unity
13:3013.05.24
-
12:4513.05.24
-
11:5413.05.24
-
Parliament Committee approves bill on transparency of foreign influence in third hearing
11:0113.05.24
-
10:3013.05.24
-
Echmiadzin 'captures' the Georgian Orthodox monastery of Kobairi
9:4613.05.24
-
10:0011.05.24
-
18:0010.05.24
-
Georgian Deputy Defence Minister joins Invictus Games anniversary in London
17:1310.05.24