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Rare diseases coordinating council approves national achondroplasia protocol

27.07.23 12:10


Rare diseases coordinating council approved national achondroplasia protocol.

 

Ivane Chkhaidze, the medical director of the Iashvili Central Children's Hospital, told journalists about this.

 

According to Chkhaidze, treatment of 5-6 children was determined at the first stage, and Iashvili Central Children's Hospital was selected for treatment.

 

"The protocol received a very high evaluation from a German expert, who directly noted that such a good, detailed and informative protocol regarding this disease does not exist in the world today. The medicine [vosoritide] has certain side effects that may require a doctor's supervision and even medical intervention, so one clinic was selected in Georgia, it is the Iashvili Children's Central Hospital. Implementation of this protocol and detailed study of patients requires a multi-disciplinary clinic, with the participation of at least 6-7 different specialists, which is provided in the Iashvili clinic.

 

The date has not been set yet, but in 2023 they will be involved in this process. At the first stage, 5-6 children were identified," Chkhaidze said.

 

 

 

source: IPN 

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